What do you do when your newborn screening program grows in importance, beyond its original data management origins in a time of cloud computing and integrated informatics systems for healthcare? Entities such as Newborn Screening Ontario (NSO) have risen to the challenges inherent to this question, undertaking an end-to-end assessment of their needs and existing capabilities, in the process deciding on "a holistic full product lifecycle redesign approach." This paper describes the full process as conducted by NSO, from theory to practice. The authors conclude "that developing, implementing, and deploying a [screening information management system] is about much more than the technology; team engagement, strong leadership, and clear vision and strategy can lead newborn screening programs looking to do the same to success and long-term gains in patient outcomes.
This is a collection of free online introductory laboratory informatics courses developed by the Centers for Disease Control and Prevention (CDC) and the Association of Public Health Laboratories (APHL). The first two courses follow the journey of a specimen through the laboratory and explores the generation and transmission of data and results within and outside of the laboratory. A third course on laboratory informatics systems is in development. Participants can earn Professional Acknowledgment for Continuing Education® (P.A.C.E.®) credits upon completion.