The clinical registry is an important tool in assisting those affected by rare diseases. Using observational study methods, the registry collects and assists with analysis of data related to a particular disease or condition, helping to serve researchers and their policies towards helping the afflicted. While studies have been performed on the "fit for use" nature of registry data, data quality studies of registries using specific quality improvement approaches have been fewer. Pratt et al. give their take on a quality improvement scheme for registries in this 2019 paper, tapping into the significant data generated by the ImproveCareNow (ICN) Network and its goal of improving outcomes of pediatric and adolescent inflammatory bowel diseases. After going through their methodology, the authors conclude that data quality improvement campaigns, particularly those that include support for training and tools, can improve "the completeness and consistency" of registry data, and by extension resulting "in a higher level of confidence when accessing the data for various purposes, including clinical decision making."
This document is based on a presentation delivered by chemist and automation consultant Joe Liscouski at the 2nd Annual Lab Asset & Facility Management in Pharma 2019 conference held in San Diego, CA, on October 22nd, 2019. It is not a verbatim transcript, but an expansion of the material presented. The presentation addressed the importance of effective technology management and planning within scientific work. With improved technology management and planning, "[t]hat work should yield better organized systems, reduced costs, better workflows, and improved ROI. How do you go about it? That is what we’ll start to address in this material."
This recorded Lab Informatics Tutorial series is designed as a management level view of laboratory systems and is appropriate for anyone planning, reviewing, or approving the acquisition of laboratory informatics. A background in science is not necessary to follow the presented material. Its purpose is to provide you with an understanding of how these technologies (Laboratory Information Management Systems, Electronic Laboratory Notebooks, Scientific Data Management Systems, Laboratory Execution Systems, Instrument Data Systems, and supporting technologies ) can be used to support/improve your labs operations, and the considerations that need to be taken into account before they are purchased.