| 1 week ago - Scientific Consultant Kolabtree - Remote, Remote RemoteKolabtree (www.kolabtree.com) is the world’s leading platform for scientists that matches freelance PhD-qualified experts with projects that need their skill set. Kolabtree functions on a...
4 weeks ago - LIMS Developer The People Pod - Manchester, UK, United Kingdom M1 4PY
Senior LIMS Developer(SQL, J Script, .NET, VB)Is this you?A Senior LIMS developer. (SQL, J Script, .NET, VB), a graduate in a computer related subject or... | 
The clinical registry is an important tool in assisting those affected by rare diseases. Using observational study methods, the registry collects and assists with analysis of data related to a particular disease or condition, helping to serve researchers and their policies towards helping the afflicted. While studies have been performed on the "fit for use" nature of registry data, data quality studies of registries using specific quality improvement approaches have been fewer. Pratt et al. give their take on a quality improvement scheme for registries in this 2019 paper, tapping into the significant data generated by the ImproveCareNow (ICN) Network and its goal of improving outcomes of pediatric and adolescent inflammatory bowel diseases. After going through their methodology, the authors conclude that data quality improvement campaigns, particularly those that include support for training and tools, can improve "the completeness and consistency" of registry data, and by extension resulting "in a higher level of confidence when accessing the data for various purposes, including clinical decision making."
This document is based on a presentation delivered by chemist and automation consultant Joe Liscouski at the 2nd Annual Lab Asset & Facility Management in Pharma 2019 conference held in San Diego, CA, on October 22nd, 2019. It is not a verbatim transcript, but an expansion of the material presented. The presentation addressed the importance of effective technology management and planning within scientific work. With improved technology management and planning, "[t]hat work should yield better organized systems, reduced costs, better workflows, and improved ROI. How do you go about it? That is what we’ll start to address in this material."
